Christianity General Long Term Care Mobile devices Parkinson's

A Reminder

A family member felt that I had implied in one of my christianity posts she was being misled. I told her why I was writing the blog. She then understood but suggested I put a reminder in from time to time. So here goes…

The main purpose is to journal my experience with a progressive neurodegenerative disease. It reflects my memories, my impressions and thought processes.

I recognize that the thoughts will become less precise over time, and may even now be, and that I would no longer be able to judge that.

My time is short so I have limited my writing to just a few topics. It is not a blog, but rather a journal. So there is no public comments section that one finds in a blog. It was meant as a vehicle where can express my thoughts for the therapeutic value that can give.

Why is Christianity a topic? I have been concerned that my unorthodox behavior and understanding would have turned my family, the main target of my writings, off Christianity so I wanted explain how it came about.

So no, if it appears that I am writing negatively of you, or of an organization, it is not a reflection on you but reflects what I was thinking at the time and is a representation of my mental and psychological condition.

So please this is not a blog used for expressing my opinions on a topic, but a with family and close friends as target audience.

Long Term Care Mobile devices Parkinson's

Out of the Box 1


Insomnia has been my companion for a long time. I was watching a video of an elderly man, in the UK or Scotland I believe, who felt “abandoned” in the care home was the term he used. I certainly can relate to that.

Thinking Out of the Box

I have been attempting to find solution for my Parkinson’s disease support needs. I listen to the radio and write in the blog using my phone. Then the thought came into my head, what if “they” confiscated my phone? It was such a horrible thought that it immediately woke me up. To counter the negative thought, I asked what if instead each resident is given a smartphone and is provided support using the phone as part of the support system? Now that many exiting ideas possible.

It is such a long name I’m going to create an acronym: pdss or Parkinson’s Disease Support System.

The pdss could exist in several versions, one version for the individual pwp living at home and supported by one or more caregivers, another version for a group of pwps in a care home environment.


The purpose of the pdss is to facilitate the care of pwps to make up for the current shortage of healthcare.

What would it look like? At this point in time I have no idea as one would determine that through consultation. Here are some features I would like to see. The pdss could provide access to information in many different languages. This could take the form of books, plays, movies, news, training, communication and much more.

The form of the smartphone would be adapted to suit the individual’s capabilities. Fortunately a smartphone is relatively lightweight. It can be enhanced by technologies like DEX to give a larger display.